World Bee Day is a really special day for Noah.

Many of you already know that Noah absolutely loves gardening, and over the past year his passion for beekeeping has grown even bigger. From a very young age, he has been fascinated by bees and how important they are to our world. Watching his confidence and knowledge grow through his beekeeping journey has been incredible.

Last year, for his 13th birthday, Noah received his very first beehive, something he had dreamed about for such a long time. Since then, he has learnt so much about caring for bees, maintaining the hive, and even harvesting honey. He takes his role as a beekeeper very seriously and loves looking after his bees. As Noah says, “Bees do so much for us, so we should do everything we can to help them too.”

Living with spina bifida and hydrocephalus means Noah faces daily challenges, but his determination never stops him from following his passions. Beekeeping has become something that brings him so much happiness, confidence, and purpose.

As Noah’s mum, it has been wonderful to watch his interest in bees grow over time. When he was a just year old we would take him out pointing at the flowers and the bees, saying buzzzz buzzzz, he would then repeat the sound. He also loved sitting amongst the lavender watching all of the bees it brought to the garden. What started as simple curiosity has slowly turned into creativity, excitement, and now the early ideas for what could one day become his own bee-themed business.

September 2024 – Noah Meets Adrian’s Bees

In September 2024 Noah was given a very special opportunity to visit Uncle Adrian and see his bees. Noah has been interested in bees and beehives for a long time, so he was incredibly excited about the visit.

Adrian was very kind and invited Noah along to learn more about them. To make things easier, and to keep Noah warm and safe from the bees flying around, Adrian brought pieces of the hive inside. This allowed Noah to take a really good look at the different parts of the hive and ask lots of questions without getting in the way of the bees outside.

It was lovely to see how fascinated Noah was by everything. He even had a taste of the honey directly from the hive!

We are thrilled to announce the launch of our revamped website just in time for his 13th birthday!

This website is dedicated to providing support, information, and resources to families affected by Spina Bifida and Hydrocephalus.

About Noah : Noah was born in March 2012 He was diagnosed with Spina Bifida from early on in the pregnancy and as time progressed there became more complications, it became apparent that Noah was missing a back quarter of his brain, would be paralysed from the chest down, the Spina Bifida was thought to be so large that they would not be able to close the gap. 

There was also a chance he would have Down syndrome as we never had the test due to there being a chance of miscarriage. 

As well as the above Noah also has a chance of having Edwards Syndrome “Edwards syndrome is a chromosomal abnormality characterized by the presence of an extra copy of genetic material on the 18th chromosome, either in whole or in part. 

The additional chromosome usually occurs before conception.